Expressions of interest are being invited for a consumer representative with lived experience of cystic fibrosis to join our Scientific Management Committee. The role of the Scientific Management Committee is to implement the research priorities of the AREST CF collaboration.
The roles and responsibilities of the Committee are to provide scientific direction and to ensure the objectives of AREST CF are reflected in the research. This includes:
Progress review of current projects, including the AREST CF Surveillance Study.
Review and approval of new projects, collaborations and Chief Investigators.
Review and approval of new proposals relating to grant applications and manuscript concepts.
Review and approval of new requests for access to AREST CF biological samples/data.
Progress review of research outputs, including publications, conference presentations and grant applications
Monitor and align research efforts to ensure research will lead to meaningful benefits for patients in clinical practice.
Prioritisation, review and approval of proposed data analysis and publications.
Nominate CI panel to adjudicate publication and strategic recruitment of new personnel.
Approve community engagement strategy and activities.
Attend monthly meetings in person (at Telethon Kids Institute) or via teleconference.
Provide advice and expertise relating to consumer priorities and perspectives regarding research and clinical activities.
Where appropriate disseminate information or provide access to any relevant parent or community groups.
Provide input into reporting of consumer participation activities.
Provide regular updates to the group on participation activities.
Participate and provide input into activities of the committee. These may include the following:
Support will be provided including:
Training relevant to the consumer representative role
Reimbursement of expenses involved in meeting attendance
Please contact the AREST CF Operations Team at arestCF@telethonkids.org.au or 08 6319 1663 to request further information or to express an interest in the position.