Expressions of interest are being invited for both our Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA.
We are looking for an additional 3 members to join the Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA. It is a formalized group of parents and patients with cystic fibrosis brought together to:
Support the development of partnerships between consumers, researchers, research organizations and clinical staff.
Provide a consumer perspective to both clinical and research aspects of cystic fibrosis.
Advise about research and clinical priorities, practice and policies.
Enhance the quality and relevance of research and clinical activities through consumer participation.